When is cf week

The benefit of these activities is broader than the exercise itself, but extends into the relationships, empowerment and self-esteem, which contributes to a trajectory of health and longevity.

Rather, it was Chris who used his grant to cycle miles across the Canadian Rockies; Anna who used her grant to compete in swimming at the World Transplant games in South Africa brining home numerous silver and gold medals; Vicki, who used her grant to touch the sky snowboarding in Lake Tahoe; Malin, whose grant helped her to jump her horse higher than ever; and Xavier, whose grant helped him climb to the top of the world! Every and any contribution you make will bring unforeseeable outcomes for someone with CF that would otherwise be impossible.

Brian Callanan is currently years-old, and was diagnosed with cystic fibrosis at birth. He is the Founder and Executive Director of the CFLF, and practices an active lifestyle primarily through swimming and cycling on and off road, but also enjoys snowboarding, hiking, sailing and rock-climbing. You may email him directly at brian cflf. To receive an e-mail notification and link to the new CFLF blog post each week please e-mail erin cflf.

Connect with Us:. Skip to main content. CF Awareness Month Posted by:. Add new comment Your name. More information about text formats. Web page addresses and e-mail addresses turn into links automatically. Lines and paragraphs break automatically.

Leave this field blank. Visit cfnz. As a charitable organisation, we rely almost entirely on the generosity of the New Zealand public to provide services such as our fieldworkers, information guides, and welfare and emergency grants. Order a few booklets and entice your friends and family all in support of cystic fibrosis.

Keep an eye out on our social media and website for updates. Get sweating for CF Jump on to sweat4cf. You can take on any challenge that breaks a sweat and get your friends and family to sponsor you. New treatments are being developed all the time which are drastically improving the ability of children and adults to manage the illness. Regular blood and lung function tests, and chest x-rays help doctors to monitor the illness and prescribe the appropriate medication if needed.

A specific diet is usually also prescribed. In the United States and elsewhere, researchers are working on the development of new treatments including an inhaled spray containing normal copies of the CF gene.

In short, the normal genes deliver the correct copy of the CF gene into the lungs of CF patients. Other treatments include protein repair therapy, and there are tests being carried out to see whether curcumin turmeric may be effective in treating the condition.

Being the parent of a child with CF can be challenging and worrying but there may be local support groups in your area, so you should not feel alone.

This article is for information purposes only and should not be used as a substitute for professional medical help. If you or your child is unwell you should consult a medical professional.

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